Rare Disease is Not a Rare Problem

Sign up in just a few minutes to help accelerate cures for rare neurodevelopmental diseases by including your medical records as part of a coordinated research effort between 50+ Patient Advocacy Groups.
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How it works
Sign Up (~5 min)
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Answer a few basic questions about your medical history.
We collect your records
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Citizen Health will do the work of contacting your medical providers and requesting your records at no cost.
Access + share your data

See all your records in one place + easily share them with doctors and researchers.
Power breakthroughs

Help your rare disease community reach its research target and ensure inclusion in studies that drive life-changing treatments and accelerate cures.
Our advocacy partners
Connecting patients,
accelerating cures.
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