When co-founder Nasha Fitter’s youngest daughter was diagnosed with the rare disease FOXG1 syndrome, Nasha quickly learned that despite access to great care there was little to no information about the disease or how to navigate it, and not a single therapy on the market. She launched a nonprofit organization to address this gap and quickly found that access to rich clinical information was the biggest gap in advancing research for a cure.
In 2017, Farid co-founded a company, Ciitizen, where the goal was to build a platform that allowed cancer patients seamless access to their data. When Nasha joined the company in 2018 and helped evolve its focus into rare disease, it became clear that this unique approach could unlock key clinical data and build a patient community that could fundamentally shift care for patients with rare diseases while accelerating cures.
In 2023, Nasha and Farid co-founded Citizen Health to fundamentally flip the system on its head: empowering patients to drive their care and research through their own health data and accelerate treatments for those who need it most.
