In the News | Citizen Health Press Highlights

Following her daughter’s diagnosis with the ultra-rare neurodevelopmental disorder FOXG1 syndrome, Fitter co-founded the FOXG1 Research Foundation and Citizen Health. Her mission: to not only develop a foundation-led gene therapy but also to create a platform that supports families throughout their care journey while gathering essential health data.

Nasha Fitter is the co-founder and CEO of the FOXG1 Research Foundation. Nasha helped launch a global effort to accelerate a cure. She's also the co-founder and Chief Business Officer of Citizen Health, a patient-led platform helping families take control of their health data.

Key to Citizen Health’s impact is personalization. For rare disease patients, generic AI support isn’t enough. The more complex the condition, the more essential context becomes. Meaningful guidance demands a complete picture of an individual’s care journey, clinical history, home life, school, insurance, and beyond. With Citizen Health, each patient’s medical record serves as the platform of truth, augmented with community knowledge, allowing families to understand patterns and make informed next steps.

The Citizen Health app gathers medical records, genetic reports, imaging studies, and clinical notes from across health care systems, and then uses AI to help families interpret and act on that information. Users can ask questions, track symptoms, and record appointments. “We really think of it as their advocate that knows everything about their information,” CEO Farid Vij says.

Citizen Health announced the launch of its mobile app, bringing its AI Advocate directly to patients and caregivers navigating rare and complex conditions. The app enables users to record and summarize medical visits, receive structured summaries tied to their full longitudinal history, and access and understand their complete medical records in one place, advancing Citizen Health’s mission to empower patients with their data and strengthen real-world evidence.

Citizen Health today announced a new strategic partnership with UCB, a global biopharmaceutical leader in neurological and autoimmune research and development. The multi-year collaboration launches with a focus on epilepsy and five rare disease indications.

HIPAA. State laws. AI. Trust. Privacy leaders Deven McGraw, Tina Grande (Healthcare Trust Institute), Lucia Savage (Omada Health), and Robin Strongin (HealthDame) break down what protecting your health data looks like—and how AI is redefining patient control and consent.

Healthcare interoperability is moving quickly with major updates from CMS, ONC, and new rules shaping how payers and providers share data. In this episode of InteropChat, we bring together top experts to unpack what these changes mean for health systems, policy leaders, and technology innovators.

From Endpoints News Health Tech newsletter: Now, Citizen is building an AI advocate that can summarize personal health data, ideally making it easier to use those data in future doctor’s appointments. As a standalone company, Vij said, it can move faster than it might have inside a larger company, especially as AI speeds up what teams are able to do.

At its core, Citizen Health is building a beautiful consumer platform that brings together every piece of a patient’s health journey—clinical data, genetic information, imaging, patient-reported outcomes, and claims.

Citizen Health, a patient-powered platform transforming rare disease care, announced today it has raised $30 million in Series A funding. The round was led by 8VC, with participation from Transformation Capital and Headline, bringing the company's total funding to $44 million since its December 2023 launch.

Why it matters: Citizen aims to equip people with rare diseases, who often face medical dead ends, with an AI-powered advocate to navigate care and interpret records.