Join the Malan Syndrome community on Citizen

Malan Syndrome Foundation has partnered with Citizen Health to help patients and families use their health data to improve care and drive groundbreaking treatments.

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Advancing research for Malan Syndrome
Natural history studies are critical to advance understanding of our disease. Citizen will collect, organize and harmonize clinical data from patient medical records to deliver a cost-effective natural history dataset without burdening patients with clinic visits. Please join Citizen and participate in our community's efforts to accelerate treatments.
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How it works
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Easily access your medical records
Gain insight into your disease
Choose to share your data to accelerate new treatments
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people heal.
Citizen Health helps patients and families learn from the shared experience of others to improve our health journey.
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Connecting patients,
accelerating cures.
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