Join the Kleefstra Syndrome community on Citizen

Idefine has partnered with Citizen Health to help patients and families use their health data to improve care and drive groundbreaking treatments.

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Advancing research for Kleefstra Syndrome
Natural history studies are critical to advance understanding of our disease. Citizen will collect, organize and harmonize clinical data from patient medical records to deliver a cost-effective natural history dataset without burdening patients with clinic visits. Please join Citizen and participate in our community's efforts to accelerate treatments.
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How it works
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Easily access your medical records
Gain insight into your disease
Choose to share your data to accelerate new treatments
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Citizen Health helps patients and families learn from the shared experience of others to improve our health journey.
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